Patient Education and Counseling
Volume 84, Issue 2 , Pages 265-270 , August 2011

Informed decision-making in prenatal screening for Down's syndrome: What knowledge is relevant?

  • H.M.H.J.D. Schoonen

      Affiliations

    • Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
    • Department of Obstetrics and Gynaecology, division of Obstetrics and Prenatal Medicine, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
    • Corresponding Author InformationCorresponding author at: Department of Public Health, Erasmus MC University Medical Center Rotterdam, Room AE-206, 3000 CA Rotterdam, The Netherlands. Tel.: +31 10 704 3732; fax: +31 10 703 8474.
    • ,
  • H.M.E. van Agt

      Affiliations

    • Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
    • ,
  • M.L. Essink-Bot

      Affiliations

    • Department of Social Medicine, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
    • ,
  • H.I. Wildschut

      Affiliations

    • Department of Obstetrics and Gynaecology, division of Obstetrics and Prenatal Medicine, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
    • ,
  • E.A.P. Steegers

      Affiliations

    • Department of Obstetrics and Gynaecology, division of Obstetrics and Prenatal Medicine, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands
    • ,
  • H.J. de Koning

      Affiliations

    • Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands

Received 4 March 2010 ,Revised 16 June 2010 ,Accepted 23 July 2010.

References 

  1. Health council of The Netherlands: committee genetic screening. Genet Screen. 1994;22
  2. Health Council of the Netherlands. Prenatal screening (2); Down's syndrome, neural tube defects, Health Council of the Netherlands; 2004, 2004/06.
  3. Health Council of the Netherlands, Population screening act: inition of a national programme for prenatal screening: Down's syndrome and neural tube defects [Wet Bevolkingsonderzoek: aanzet voor een landelijk programma voor prenatale screening]; 2006, 2006/03.
  4. Health Council of the Netherlands: Committee on the Population Screening Act, Population screening act: the assessment of permit applications; 1996, P 09WBO.
  5. Grijseels EWM, Laudy JAM, Galjaard RJH, Wildschut HIJ. [Prenatal testing for Down's syndrome: medico-technical considerations and dilemmas arising from current opportunities. In Dutch] Prenataal onderzoek naar Down syndroom: medisch-technische overwegingen en dilemma's voortkomend uit de huidige toepassingsmogelijkheden. Ned Tijdschr Geneeskd. 2004;148:2166–2171
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  10. Wald N. Information leaflets in medical screening. J Med Screen. 2006;13:109
  11. Kohut RJ, Dewey D, Love EJ. Women's knowledge of prenatal ultrasound and informed choice. J Genet Couns. 2002;11:265–276
  12. Smith RP, Titmarsh S, Overton TG. Improving patients’ knowledge of the fetal anomaly scan. Ultrasound Obstet Gynecol. 2004;24:740–744
  13. Zapka JG, Geller BM, Bulliard JL, Fracheboud J, Sancho-Garnier H, Ballard-Barbash R, et al. Print information to inform decisions about mammography screening participation in 16 countries with population-based programs. Patient Educ Couns. 2006;63:126–137
  14. Royal College of Obstetricians and Gynaecologists. Report of the working party on biochemical markers and the detection of Down's syndrome. RCOG Press; 1993.
  15. Dutch National Institute for Public Health and the Environment (RIVM). Information about screening for Down's Syndrome and the 20-week ultrasound, http://www.rivm.nl/pns_en/down_ultrasound/information/; 2010.
  16. Hak T, van der Veer K, Jansen H. The Three-Step Test-Interview (TSTI): an observational instrument for pretesting self-completion questionnaires. Report Series Research in Management; 2004.
  17. Hunt LM, de Voogd KB, Castaneda H. The routine and the traumatic in prenatal genetic diagnosis: does clinical information inform patient decision-making?. Patient Educ Couns. 2005;56:302–312
  18. Goel V, Glazier R, Holzapfel S, Pugh P, Summers A. Evaluating patient's knowledge of maternal serum screening. Prenat Diagn. 1996;16:425–430
  19. van den Berg M, Timmermans DR, Ten Kate LP, van Vugt JM, van der Wal G. Are pregnant women making informed choices about prenatal screening?. Genet Med. 2005;7:332–338
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PII: S0738-3991(10)00438-6

doi: 10.1016/j.pec.2010.07.037

Patient Education and Counseling
Volume 84, Issue 2 , Pages 265-270 , August 2011

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