Patient Education and Counseling
Volume 84, Issue 2 , Pages 236-244 , August 2011

Using freelisting to understand shared decision making in ADHD: Parents’ and pediatricians’ perspectives

  • Alexander G. Fiks

      Affiliations

    • The Pediatric Research Consortium, The Children's Hospital of Philadelphia, Philadelphia, PA, USA
    • The Pediatric Generalist Group, The Children's Hospital of Philadelphia, Philadelphia, PA, USA
    • Department of Pediatrics, The University of Pennsylvania School of Medicine, Philadelphia, PA, USA
    • Corresponding Author InformationCorresponding author at: The Pediatric Generalist Research Group, The Children's Hospital of Philadelphia, 3535 Market Suite, Room 1546, Philadelphia, PA 19104, USA. Tel.: +1 267 426 2304, fax: +1 267 426 0380.
    • ,
  • Angela Gafen

      Affiliations

    • The Pediatric Generalist Group, The Children's Hospital of Philadelphia, Philadelphia, PA, USA
    • Department of Pediatrics, The University of Pennsylvania School of Medicine, Philadelphia, PA, USA
    • ,
  • Cayce C. Hughes

      Affiliations

    • The Pediatric Generalist Group, The Children's Hospital of Philadelphia, Philadelphia, PA, USA
    • Department of Pediatrics, The University of Pennsylvania School of Medicine, Philadelphia, PA, USA
    • ,
  • Kenya F. Hunter

      Affiliations

    • The Pediatric Generalist Group, The Children's Hospital of Philadelphia, Philadelphia, PA, USA
    • Department of Pediatrics, The University of Pennsylvania School of Medicine, Philadelphia, PA, USA
    • ,
  • Frances K. Barg

      Affiliations

    • The Department of Family and Community Health, The University of Pennsylvania School of Medicine, Philadelphia, PA, USA

Received 9 February 2010 ,Revised 13 May 2010 ,Accepted 23 July 2010.

References 

  1. Institute of Medicine (U.S.) . Committee on Quality of Health Care in America. Crossing the quality chasm: a new health system for the 21st century. Washington, DC: National Academy Press; 2001;
  2. Institute of Medicine (U.S.) . Committee on Comparative Effectiveness Research Prioritization. Initial national priorities for comparative effectiveness research. Washington, DC: National Academy Press; 2009;
  3. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44:681–692
  4. Committee on Quality Improvement, Subcommittee on Attention-Deficit/Hyperactivity Disorder, Clinical practice guideline: diagnosis and evaluation of the child with attention-deficit/hyperactivity disorder. American Academy of Pediatrics. Pediatrics 2000;105:1158–70.
  5. Green M, Wong M, Atkins D. Diagnosis of Attention-Deficit/Hyperactivity Disorder: technical review 3. Rockville, MD: US Department of Health and Human Services; 1999. Report No.: Agency for Health Care Policy and Research publication 99-0050.
  6. Visser SN, Lesesne CA. Mental health in the United States: prevalence of diagnosis and medication treatment for Attention-Deficit/Hyperactivity Disorder – United States, 2003. Morb Mortal Wkly Rep 2005;54:842–7.
  7. Loe IM, Feldman HM. Academic and educational outcomes of children with ADHD. Ambul Pediatr. 2007;7:82–90
  8. Klassen AF, Miller A, Fine S. Health-related quality of life in children and adolescents who have a diagnosis of Attention-Deficit/Hyperactivity Disorder. Pediatrics. 2004;114:e541–e547
  9. Leibson CL, Katusic SK, Barbaresi WJ, Ransom J, O’Brien PC. Use and costs of medical care for children and adolescents with and without Attention-Deficit/Hyperactivity Disorder. J Amer Med Assoc. 2001;285:60–66
  10. Guevara J, Lozano P, Wickizer T, Mell L, Gephart H. Utilization and cost of health care services for children with Attention-Deficit/Hyperactivity Disorder. Pediatrics. 2001;108:71–78
  11. Chan E, Zhan C, Homer CJ. Health care use and costs for children with Attention-Deficit/Hyperactivity Disorder: national estimates from the medical expenditure panel survey. Arch Pediatr Adolesc Med. 2002;156:504–511
  12. Swensen A, Birnbaum H, Secnik K, Marynchenko M, Greenberg P, Claxton A. Attention-Deficit/Hyperactivity Disorder: increased costs for patients and their families. J Am Acad Child Adolesc Psychiatr. 2003;42:1415–1423
  13. Committee on Quality Improvement, Subcommittee on Attention-Deficit/Hyperactivity Disorder, Clinical practice guideline: treatment of the school-aged child with attention-deficit/hyperactivity disorder. Pediatrics 2001;108:1033–44.
  14. Olfson M, Gameroff MJ, Marcus SC, Jensen PS. National trends in the treatment of attention deficit hyperactivity disorder. Am J Psychiatr. 2003;160:1071–1077
  15. Hudson JL, Miller GEP, Kirby JB. Explaining racial and ethnic differences in children's use of stimulant medications. Med Care. 2007;45:1068–1075
  16. Power TJ, Mautone JA, Manz PH, Frye L, Blum NJ. Managing Attention-Deficit/Hyperactivity Disorder in primary care: a systematic analysis of roles and challenges. Pediatrics. 2008;121:e65–e72
  17. Kleinman A, Eisenberg L, Good B. Culture, illness, and care. Ann Intern Med. 1978;88:251
  18. Eisenberg JM. Sociologic influences on decision-making by clinicians. Ann Intern Med. 1979;90:957–964
  19. Haidet P, O’Malley KJ, Sharf BF, Gladney AP, Greisinger AJ, Street RL. Characterizing explanatory models of illness in healthcare: development and validation of the CONNECT instrument. Patient Educ Couns. 2008;73:232–239
  20. Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999;49:651–661
  21. McGuire ALJDP, McCullough LBP, Weller SCP, Whitney SNMDJD. Missed expectations?: physicians’ views of patients’ participation in medical decision-making. Med Care. 2005;43:466–470
  22. Brinkman WB, Sherman SN, Zmitrovich AR, Visscher MO, Crosby LE, Phelan KJ, et al. Parental angst making and revisiting decisions about treatment of Attention-Deficit/Hyperactivity Disorder. Pediatrics. 2009;124:580–589
  23. Pappadopulos E, Jensen PS, Chait AR, Arnold LE, Swanson JM, Greenhill LL, et al. Medication adherence in the MTA: saliva methylphenidate samples versus parent report and mediating effect of concomitant behavioral treatment. J Am Acad Child Adolesc Psychiatr. 2009;48:501–510
  24. The MTA Cooperative Group. Moderators and mediators of treatment response for children with attention-deficit/hyperactivity disorder: the Multimodal Treatment Study of children with Attention-deficit/hyperactivity disorder. Arch Gen Psychiatr 1999;56:1088–96.
  25. McMaster University E-BPC . Treatment of Attention-Deficit Hyperactivity Disorder. Rockville, MD: Agency for Health Care Policy and Research; 1999;
  26. Weller SC, Romney AK. Systematic data collection. Newbury Park, CA: Sage Publications; 1988;
  27. Bernard HR. Research methods in anthropology: qualitative and quantitative approaches. 4th ed.. Walnut Creek: Alta Mira Press; 2002;
  28. Collins C, Dressler W. Cultural consensus and cultural diversity: a mixed methods investigation of human service providers’ models of domestic violence. J Mix Meth Res. 2008;2:362–387
  29. Schrauf RW, Sanchez J. Using freelisting to identify, assess, and characterize age differences in shared cultural domains. J Gerontol B: Psychol Sci Soc Sci. 2008;63:S385–S393
  30. Dressler WW. Modernization, stress, and blood pressure: new directions in research. Hum Biol. 1999;71:583–605
  31. Barg FK, Huss-Ashmore R, Wittink MN, Murray GF, Bogner HR, Gallo JJ. A mixed-methods approach to understanding loneliness and depression in older adults. J Gerontol B: Psychol Sci Soc Sci. 2006;61:S329–S339
  32. Barg FK, Keddem S, Ginsburg KR, Winston FK. Teen perceptions of good drivers and safe drivers: implications for reaching adolescents. Inj Prev. 2009;15:24–29
  33. Sobo EJ, Kurtin P. Variation in physicians’ definitions of the competent parent and other barriers to guideline adherence: the case of pediatric minor head injury management. Soc Sci Med. 2003;56:2479–2491
  34. Baer R, Weller S, de Alba Garcia J, Rocha A. Cross-cultural perspectives on physician and lay models of the common cold. Med Anthropol Quart. 2008;22:148–166
  35. Wolraich ML, Lambert W, Doffing MA, Bickman L, Simmons T, Worley K. Psychometric properties of the Vanderbilt ADHD Diagnostic Parent Rating Scale in a referred population. J Pediatr Psychol. 2003;28:559–568
  36. Borgatti S. Anthropac 4.0 analytic technologies. MA: Natick; 1996;
  37. Borgatti S. Anthropac 4.0 methods guide. MA: Natick; 1996;
  38. Borgatti S. Cultural concensus theory. In:  Schensul J editors. The ethnographic toolkit. Newbury Park, CA: Sage Publications; 1999;
  39. Winkielman P, Halberstadt J, Fazendeiro T, et al. Prototypes are attractive because they are easy on the mind. Psychol Sci. 2006;17:799–806
  40. Leslie LK, Plemmons D, Monn AR, Palinkas LA. Investigating ADHD treatment trajectories: listening to families’ stories about medication use. J Dev Behav Pediatr. 2007;28:179–188
  41. Olaniyan O, dosReis S, Garriett V, Mychailyszyn MP, Anixt J, Rowe PC, et al. Community perspectives of childhood behavioral problems and ADHD among African American parents. Ambul Pediatr. 2007;7:226–231
  42. dosReis S, Mychailyszyn MP, Myers M, Riley AW. Coming to terms with ADHD: how urban African-American families come to seek care for their children. Psychiatr Serv. 2007;58:636–641
  43. dosReis S, Butz A, Lipkin P, Anixt J, Weiner C, Chernoff R. Attitudes About stimulant medication for Attention-Deficit/Hyperactivity Disorder among African American families in an inner city community. J Behav Health Serv Res. 2006;33:423–430
  44. Eiraldi R, Mazzuca L, Clarke A, Power T. Service utilization among ethnic minority children with ADHD: a model of help-seeking behavior. Adm Policy Ment Health. 2006;33:607–622
  45. Bussing R, Schoenberg NE, Perwien AR. Knowledge and information about ADHD: evidence of cultural differences among African-American and white parents. Soc Sci Med. 1998;46:919–928
  46. Feudtner C. Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making. Pediatr Clin North Am. 2007;54:583–607ix
  47. Feudtner C, Santucci G, Feinstein JA, Snyder CR, Rourke MT, Kang TI. Hopeful thinking and level of comfort regarding providing pediatric palliative care: a survey of hospital nurses. Pediatrics. 2007;119:e186–e192
  48. Rushton JL, Fant KE, Clark SJ. Use of practice guidelines in the primary care of children with attention-deficit/hyperactivity disorder. Pediatrics. 2004;114:e23–e28
  49. Leslie LK, Wolraich ML. ADHD service use patterns in youth. Ambul Pediatr. 2007;7:107–120
  50. National Institute of Mental Health. The Road Ahead: Research Partnerships to Transform Services. Rockville, MD: National Institute of Mental Health; 2006.
  51. Guevara JP, Feudtner C, Romer D, Power T, Eiraldi R, Nihtianova S, et al. Fragmented care for inner-city minority children with attention-deficit/hyperactivity disorder. Pediatrics. 2005;116:e512–e517

PII: S0738-3991(10)00436-2

doi: 10.1016/j.pec.2010.07.035

Patient Education and Counseling
Volume 84, Issue 2 , Pages 236-244 , August 2011

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