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Patient Education and Counseling
Volume 81, Issue 1
, Pages 53-62
, October 2010
Conceptualizing couples’ decision making in PGD: Emerging cognitive, emotional, and moral dimensions
References
- . Pregnancies from biopsied human preimplantation embryos sexed by Y-specific DNA amplification. Nature. 1990;344:768–770
- . Analysis of the first polar body: preconception genetic diagnosis. Hum Reprod. 1990;5:826–829
- . Preimplantation genetic diagnosis: experience of 3000 clinical cycles. Reprod Biomed Online. 2001;3:49–53
- . Preimplantation HLA testing. J Amer Med Assoc. 2004;291:2079–2085
- . ESHRE PGD Consortium data collection VIII: cycles from January to December 2005 with pregnancy follow-up to October 2006. Hum Reprod. 2008;23:2629–2645
- . Birth of a normal girl after in vitro fertilization and preimplantation diagnostic testing for cystic fibrosis. N Engl J Med. 1992;327:905–909
- Genesis Genetics Institute. PGD testing for hundreds of genetic disorders. http://www.genesisgenetics.org (accessed 20/08/2009).
- Reproductive Genetics Institute. What single gene disorders can be tested? http://www.reproductivegenetics.com (accessed 20/08/2009).
- . Preimplantation diagnosis for Fanconi anemia combined with HLA matching. J Amer Med Assoc. 2001;285:3130–3133
- . Current concepts in preimplantation genetic diagnosis (PGD): a molecular biologist's view. Hum Reprod Update. 2002;8:11–20
- . Over a decade of experience with preimplantation genetic diagnosis: a multicenter report. Fertil Steril. 2004;82:292–294
- . Strategies and clinical outcome of 250 cycles of preimplantation genetic diagnosis for single gene disorders. Hum Reprod. 2006;21:670–684
- . Preimplantation genetic diagnosis for monogenic diseases: overview and emerging issues. Expert Rev Mol Diagn. 2007;7:33–43
- . ESHRE PGD Consortium data collection VI: cycles from January to December 2003 with pregnancy follow-up to October 2004. Hum Reprod. 2007;22:323–336
- . ESHRE PGD consortium data collection VII: cycles from January to December 2004 with pregnancy follow-up to October 2005. Hum Reprod. 2008;23:741–755
- . Preimplantation diagnosis for early-onset Alzheimer disease caused by V717L mutation. J Amer Med Assoc. 2002;287:1018–1021
- . Preimplantation genetic diagnosis for cancer predisposition. Reprod Biomed Online. 2002;5:148–155
- . Preimplantation genetic screening (PGS) for aneuploidy in embryos after in vitro fertilization (IVF) does not improve reproductive outcome in women over 35: a prospective controlled randomized study. Fertil Steril. 2007;88:S237
- . In vitro fertilization with preimplantation genetic screening. N Engl J Med. 2007;357:9–17
- . Preimplantation genetic testing: a practice committee opinion. Fertil Steril. 2007;88:1497–1504
- . A vision for the future of genomics research. Nature. 2003;422:835–847
- . Reproduction and responsibility: the regulation of new biotechnologies. Washington, DC: President's Council on Bioethics; 2004;
- . The need for interaction between assisted reproduction technology and genetics. Eur J Hum Genet. 2006;14:509–511
- . Generation of knowledge for reproductive health technologies: constraints on social and behavioral research. J Soc Issues. 2005;61:193–205
- . The interface between assisted reproductive technologies and genetics: technical, social, ethical and legal issues. Eur J Hum Genet. 2006;14:588–645
- . The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into health care and disease prevention?. Genet Med. 2007;9:665–674
- . Anticipating issues related to increasing preimplantation genetic diagnosis use: a research agenda. Reprod Biomed Online. 2008;17:33–42
- . Guidelines for good practice in PGD. Reprod Biomed Online. 2004;9:430–434
- . ESHRE PGD Consortium ‘Best practice guidelines for clinical preimplantation genetic diagnosis (PGD) and preimplantation genetic screening (PGS)’. Hum Reprod. 2005;20:35–48
- . Emerging paradigms of cognition in medical decision-making. J Biomed Inform. 2002;35:52–75
- . Synthesizing research: a guide for literature reviews. 3rd ed.. Thousand Oaks, CA: Sage; 1998;
- . Preimplantation diagnosis: a patient perspective. Prenat Diagn. 1991;11:493–500
- . Preimplantation diagnosis or chorionic villus biopsy? Women's attitudes and preferences. Hum Reprod. 1993;8:2192–2196
- . Psychological implications and acceptability of preimplantation diagnosis. Hum Reprod. 1994;9:360–362
- . Preimplantation diagnosis and other reproductive options: attitudes of male and female carriers of recessive disorders. Hum Reprod. 1997;12:341–350
- . Attitude of potential users in Sicily towards preimplantation genetic diagnosis for beta-thalassaemia and aneuploidies. Hum Reprod. 1998;13:1936–1944
- . Attitude of Saudi families affected with hemoglobinopathies towards prenatal screening and abortion and the influence of religious ruling (Fatwa). Prenat Diagn. 2001;21:448–451
- . Attitudes towards reproductive issues and carrier testing among adult patients and parents of children with cystic fibrosis (CF). Prenat Diagn. 2001;21:1–9
- . Attitude of at-risk subjects towards preimplantation genetic diagnosis of alpha- and beta-thalassaemias in Hong Kong. Prenat Diagn. 2002;22:508–511
- . Issues and concerns of couples presenting for preimplantation genetic diagnosis (PGD). Prenat Diagn. 2002;22:1117–1122
- . Preimplantation genetic diagnosis: patients’ experiences and attitudes. Hum Reprod. 2002;17:2464–2467
- . Patients’ opinions regarding preimplantation genetic diagnosis in a Latin American fertility clinic. Fertil Steril. 2004;81:463–464
- . Experiencing new forms of genetic choice: findings from an ethnographic study of preimplantation genetic diagnosis. Hum Fertil. 2004;7:285–293
- . PGD patients’ and providers’ attitudes to the use and regulation of preimplantation genetic diagnosis. Repro Biomed Online. 2005;11:486–496
- . Public, expert and patients’ opinions on preimplantation genetic diagnosis (PGD) in Germany. Reprod Biomed Online. 2005;10:116–123
- . Attitudes to prenatal and preimplantation diagnosis in Saudi parents at genetic risk. Prenat Diagn. 2006;26:1010–1014
- . Views of BRCA gene mutation carriers on preimplantation genetic diagnosis as a reproductive option for hereditary breast and ovarian cancer. Hum Reprod. 2007;22:1573–1577
- . Synthesizing qualitative and quantitative health evidence: a guide to methods. New York: Open University Press; 2007;
- . Theoretical sensitivity: advances in the methodology of grounded theory. Mill Valley, CA: Sociology Press; 1978;
- . The discovery of grounded theory. Chicago, IL: Aldine; 1967;
- . Philosophy of natural science. Upper Saddle River, NJ: Prentice-Hall; 1966;
- . Couples facing fertility problems. In: Schmaling KB, Sher TG editor. The psychology of couples and illness: theory, research, & practice. Washington, DC: American Psychological Association; 2000;p. 241–267
- . Presenting risk information—a review of the effects of “framing” and other manipulations on patient outcomes. J Health Commun. 2001;6:61–82
- . Clinical experience with preimplantation genetic diagnosis and intracytoplasmic sperm injection. Hum Reprod. 1998;13:186–195
- . What is the most relevant standard of success in assisted reproduction? The singleton, term gestation, live birth rate per cycle initiated: the BESST endpoint for assisted reproduction. Hum Reprod. 2004;19:3–7
- . 2006 assisted reproductive technology success rates: national summary and fertility clinic reports. Atlanta, GA: U.S. Department of Health and Human Services Centers for Disease Control and Prevention; 2008;
- . Three hundred and thirty cycles of preimplantation genetic diagnosis for serious genetic disease: clinical considerations affecting outcome. BJOG. 2006;113:1393–1401
- . Controlling misdiagnosis errors in preimplantation genetic diagnosis: a comprehensive model encompassing extrinsic and intrinsic sources of error. Hum Reprod. 2001;16:43–50
- . Novel technology for simultaneous reliable measurement of multiple alleles and copy number across 24 chromosomes in single human blastomeres. Fertil Steril. 2008;89:S5
- . Infertility, assisted reproductive technology, and adverse pregnancy outcomes: executive summary of a National Institute of Child Health and Human Development workshop. Obstet Gynecol. 2007;109:967–977
- . Mental and psychomotor development of 2-year-old children born after preimplantation genetic diagnosis/screening. Hum Reprod. 2008;23:1560–1566
- . Clinical outcome of PGD. Fertil Steril. 2005;84:S99
- . The risk of major birth defects after intracytoplasmic sperm injection and in vitro fertilization. N Engl J Med. 2002;346:725–730
- . Rare congenital disorders, imprinted genes, and assisted reproductive technology. Lancet. 2003;361:1975–1977
- . Association of in vitro fertilization with Beckwith–Wiedemann syndrome and epigenetic alterations of LIT1 and H19. Am J Hum Genet. 2003;72:156–160
- . Global infertility and the globalization of new reproductive technologies: illustrations from Egypt. Soc Sci Med. 2003;56:1837–1851
- . Preimplantation genetic diagnosis: public policy and public attitudes. Fertil Steril. 2006;85:1638–1645
- . Socioeconomic and racial disparities among infertility patients seeking care. Fertil Steril. 2006;85:876–881
- . International disparities in access to infertility services. Fertil Steril. 2006;85:871–875
- . Legislature's impact on the outcome of infertility treatments—the German political contradiction. Pharm Policy Law. 2007;9:221–227
- Galpern E. Assisted reproductive technologies: overview and perspective using a reproductive justice framework. Oakland, CA: Center for Genetics and Society, 2007. http://geneticsandsociety.org/downloads/ART.pdf (accessed 14/11/2008).
- American Society for Reproductive Medicine. Q6: Is in vitro fertilization expensive? In: Frequently asked questions about infertility. http://www.asrm.org/Patients/faqs.html#Q6: (accessed 31/03/2009).
- . Choices and motivations of infertile couples. Patient Educ Couns. 1997;31:19–27
- . The economic impact of the assisted reproductive technologies. Nat Cell Biol. 2002;4:S29–S32
- . Insurance coverage and outcomes of in vitro fertilization. N Engl J Med. 2002;347:661–666
- . Insurance mandates and trends in infertility treatments. Fertil Steril. 2008;89:66–73
- . Opinions about new reproductive genetic technologies: hopes and fears for our genetic future. Fertil Steril. 2005;83:1612–1621
- . Arab Americans, African Americans, and infertility: barriers to reproduction and medical care. Fertil Steril. 2006;85:844–852
- . Reproductive autonomous choice—a cherished illusion? Reproductive autonomy examined in the context of preimplantation genetic diagnosis. Med Health Care Philos. 2004;7:175–183
- . Aspiring parents, genotypes and phenotypes: the unexamined myth of the perfect baby. Albany Law Rev. 2005;68:1097–1111
- . Pregnant, donor oocyte recipient women describe their lived experience of establishing the “family lexicon”. J Obstet Gynecol Neonatal Nurs. 2007;36:161–167
- . Decision neuroscience: new directions in studies of judgment and decision making. Curr Dir Psychol Sci. 2007;16:151–155
- ESHRE Task Force on Ethics and Law. I. The moral status of the pre-implantation embryo. Hum Reprod. 2001;16:1046–1048
- . Customizing conception: a survey of preimplantation genetic diagnosis and the resulting social, ethical, and legal dilemmas. Duke Law Technol Rev. 2002;July 23:
- . Preimplantation genetic diagnosis (PGD): European perspectives and the German situation. J Med Philos. 2004;29:623–640
- . New methods for deriving embryonic stem cell lines: are the ethical problems solved?. Fertil Steril. 2006;86:1330–1332
- . Arguing along the slippery slope of human embryo research. J Med Philos. 1996;21:61–81
- . The moral status of the human embryo: implications for IVF. Reprod Biomed Online. 2005;10(Suppl 1):17–20
- . Preimplantation genetic diagnosis as a novel source of embryos for stem cell research. Reprod Biomed Online. 2003;7:353–364
- . Is there an ethical difference between preimplantation genetic diagnosis and abortion?. J Med Ethics. 2003;29:90–92
- . Extending preimplantation genetic diagnosis: the ethical debate. Ethical issues in new uses of preimplantation genetic diagnosis. Hum Reprod. 2003;18:465–471
- . The wisdom of repugnance: why we should ban the cloning of humans. New Repub. 1997;216:17–26
- . Prenatal diagnosis and discrimination against the disabled. J Med Ethics. 1999;25:163–171
- . The morality of screening for disability. Reprod Biomed Online. 2005;10(Suppl. 1):129–132
- . Preimplantation genetic diagnosis as an alternative to amniocentesis and chorionic villus sampling: psychosocial and ethical aspects. Patient Educ Couns. 1998;35:5–13
- . Where are we going with preimplantation genetic diagnosis?. CMAJ. 2007;176:1445–1446
- . Procreative beneficence: why we should select the best children. Bioethics. 2001;15:413–426
- . In defence of procreative beneficence. J Med Ethics. 2007;33:284–288
- . Results of a survey of the legal status and attitudes towards preimplantation genetic diagnosis conducted in 13 different countries. Prenat Diagn. 1998;18:1374–1380
- . A brave new world of designer babies?. Berkeley Technol Law J. 2007;22:897–969
- . Knowledge and attitudes towards preimplantation genetic diagnosis in Germany. Hum Reprod. 2005;20:231–238
- . Sex selection—the case for. Med J Aust. 1999;171:373–375
- . Preconception gender selection for nonmedical reasons. Fertil Steril. 2001;75:861–864
- . PGD and sex selection. Hum Reprod. 2002;17:517
- . Personal desires of patients and social obligations of geneticists: applying preimplantation genetic diagnosis for non-medical sex selection. Prenat Diagn. 2002;22:1123–1129
- . Sex selection: not obviously wrong. Hastings Cent Rep. 2002;32:23–28
- . Determining access to assisted reproductive technology: reactions of clinic directors to ethically complex case scenarios. Hum Reprod. 2003;18:1343–1352
- . A survey of the practices and opinions of the domestic members of the American Society for Reproductive Medicine. Fertil Steril. 2004;82:536–542
- . Preimplantation sex selection demand and preferences in an infertility population. Fertil Steril. 2005;83:649–658
- . ACOG Committee opinion no. 360: sex selection. Obstet Gynecol. 2007;109:475–478
- . Facilitating choice, framing choice: staff views on widening the scope of preimplantation genetic diagnosis in the UK. Soc Sci Med. 2007;65:1094–1105
- Human Fertilisation and Embryology Authority. Code of practice. 7th ed. London: Human Fertilisation and Embryology Authority, 2009. http://www.hfea.gov.uk/code.html (accessed this on 29/12/2009).
- . Theory of games and economic behavior. 2nd ed.. Princeton, NJ: Princeton University Press; 1947;
- . Decision analysis: introductory lectures on choices under uncertainty. New York: Random House; 1968;
- . Models of decision making. In: Sears DO, Huddy L, Jervis R editor. Oxford handbook of political psychology. New York: Oxford University Press; 2003;p. 19–59
- . The framing of decisions and the psychology of choice. Science. 1981;211:453–458
- . Decision making in action: models and methods. Norwood, NJ: Ablex; 1993;
- . Judgment and decision making: an interdisciplinary reader. 2nd ed.. New York: Cambridge University Press; 1999;
- . Administrative behavior. New York: Macmillan; 1947;
- . Models of man: social and rational. New York: Wiley; 1957;
- . Information processing models of cognition. Annu Rev Psychol. 1979;30:363–396
- . Subjective probability: a judgment of representativeness. Cogn Psychol. 1972;3:430–454
- . On the psychology of prediction. Psychol Rev. 1973;80:237–251
- . Judgment under uncertainty: heuristics and biases. Science. 1974;185:1124–1131
- . Out of control: visceral influences on behavior. Organ Behav Hum Decis Process. 1996;65:272–292
- . Emotions. In: Gilbert DT, Fiske ST, Lindzey G editor. The handbook of social psychology, vol. 1. New York: Academic Press; 1998;p. 591–632
- . Beyond valence: toward a model of emotion-specific influences on judgement and choice. Cogn Emot. 2000;14:473–493
- . Deciding advantageously before knowing the advantageous strategy. Science. 1997;275:1293–1295
PII: S0738-3991(09)00595-3
doi: 10.1016/j.pec.2009.11.017
© 2009 Elsevier Ireland Ltd. All rights reserved.
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Patient Education and Counseling
Volume 81, Issue 1
, Pages 53-62
, October 2010
