Patient Education and Counseling
Volume 70, Issue 1 , Pages 126-134 , January 2008

Developing a stroke intervention program: What do people at risk of stroke want?

Received 24 May 2007 ,Revised 24 August 2007 ,Accepted 16 September 2007.

References 

  1. Schwamm LH, Pancioli A, Acker JE, Goldstein LB, Zorowitz RD, Shephard TJ, et al. Recommendations for the establishment of stroke systems of care: recommendations from the American Stroke Association's Task Force on the development of stroke systems. Stroke. 2005;26:690–703
  2. Straus SE, Majumdar SR, McAlister FA. New evidence for stroke prevention: scientific review. J Am Med Assoc. 2002;288:1388–1395
  3. Mathers CD, Vos ET, Stevenson CE, Begg SJ. The burden of disease and injury in Australia. Bull World Health Organ. 2001;79:1076–1084
  4. Goldstein LB, Adams R, Becker K, Furbergm CD. Primary prevention of ischemic stroke: a statement for healthcare professionals from the stroke council of the American Heart Association. Stroke. 2001;32:280–305
  5. National Institute of Neurological Disorders and Stroke (NINDS). Brain basics: preventing stroke. Retrieved March 7, 2006 from http://www.ninds.nih.gov/disorders/stroke/preventing_stroke.htm.
  6. Trobbiani K. Personal communication; 17 March 2006.
  7. Gorelick PB, Sacco RL, Smith DB, Alberts M, Mustone-Alexander L, Rader D, et al. Prevention of a first stroke: a review of guidelines and a multidisciplinary consensus statement from the National Stroke Association. J Am Med Assoc. 1999;281:1112–1120
  8. Sacco RL, Adams R, Albers G, Alberts MJ, Benavente O, Furie K, et al. Guidelines for prevention of stroke in patients with ischemic stroke or transient ischemic attack: a statement for healthcare professionals from the American Heart Association/American Stroke Association Council on Stroke: co-sponsored by the Council on Cardiovascular Radiology and Intervention: The American Academy of Neurology affirms the value of this guideline. Stroke. 2006;37:577–617
  9. Sullivan KA, White KM, Young R, Chang A, Roos C, Scott C. Predictors of intention and behaviours to reduce stroke risk amongst people at risk of stroke: an application of an extended Health Belief Model. Rehab Psychol, submitted for publication.
  10. Abraham S, Sheeran P. The health belief model. In:  Conner M,  Norman P editor. Predicting health behaviour. 2nd ed.. Buckingham: Open University Press; 2005;
  11. Lees F, Clark P, Nigg C, Newman P. Barriers to exercise behavior among older adults: a focus-group study. J Aging Phys Activ. 2005;13:23–33
  12. Waller H, Eiser C, Heller S, Knowles J, Price K. Adolescents’ and their parents’ views on the acceptability and design of a new diabetes education programme: a focus group analysis. Child Care Health Dev. 2005;31:283–289
  13. Young DR, Gittelsohn J, Charleston KF, Appel LJ. Motivations for exercise and weight loss among African-American women: focus group results and their contribution towards program development. Ethnic Health. 2001;6:227–245
  14. Waltson JT, Lissitz RW. Computer-mediated focus groups. Eval Rev. 2000;24:457–483
  15. Carroll C, Hobart J, Fox C, Tear L, Gibson J. Stroke in Devon: knowledge was good but action was poor. J Neurol Neurosurg Psychiatry. 2004;75:567–571
  16. Greenlund KJ, Neff LJ, Zheng Z, Keenan NL, Giles WH, Ayala CA, et al. Low public recognition of major stroke symptoms. Am J Prev Med. 2003;25:315–319
  17. Sullivan KA, Waugh D. Stroke knowledge and misconceptions among survivors of stroke and a non-stroke survivor sample. Top Stroke Rehabil. 2005;12:72–81
  18. Hoffman T, McKenna K. Analysis of stroke patients’ and carers’ reading ability and the content and design of written materials: recommendations for improving written stroke information. Patient Educ Couns. 2006;60:286–293
  19. Sullivan KA, O’Conor F. A readability analysis of Australian stroke information. Top Stroke Rehabil. 2001;7:52–60
  20. Hoffman T, Russell T, McKenna K. Producing computer-generated tailored written information for stroke patients and their carers: system development and preliminary evaluation. Int J Med Inform. 2004;73:751–758
  21. Bass LE, Kane-Williams E. Stereotype or reality: another look at alcohol and drug use among African American children. Public Health Rep. 1993;108:78–84
  22. Saint-Germain MA, Bassford TL, Montano G. Surveys and focus groups in health research with older Hispanic women. Qual Health Res. 1993;3:341–367
  23. Wolff B, Knodel J, Sittitrai W. Focus groups and surveys as complementary research methods: a case example. In:  Morgan DL editors. Successful focus groups: advancing the state of the art. Newbury Park, CA: Sage; 1993;p. 89–104
  24. National Stroke Foundation. Clinical guidelines for stroke rehabilitation and recovery. Retrieved March 7, 2006, from http://www.strokesafe.com.au/pages/image.aspx?assetId=RDM38667.5659170602; 2005.
  25. Odedina FT, Scrivens J, Emanuel A, Larose-Pierre M, Brown J, Nash R. A focus group study of factors influencing African-American men's prostate cancer screening behaviour. J Nat Med Assoc. 2004;96:780–788
  26. Sullivan KA, White KM, Young R, Chang A, Roos C, Scott C. Predictors of stroke knowledge amongst at risk elderly persons in Brisban, Australia. Disabil Rehabil. 2006;28:1339–1348
  27. Goel V, Gray R, Chart P, Fitch M, Saibil F, Zdanowicz Y. Perspectives on colorectal cancer screening: a focus group study. Health Expect. 2004;7:51–60
  28. Woodard D, Hernandez M, Lees E, Petersen L. Racial differences in attitudes regarding cardiovascular disease prevention and treatment: a qualitative study. Patient Educ Couns. 2004;57:225–231
  29. Cote-Arsenault D, Morrison-Beedy D. Maintaining your focus in focus groups: avoiding common mistakes. Res Nurs Health. 2005;28:172–179
  30. Kitzinger J. Qualitative research: introducing focus groups. Br Med J. 1995;311:299–302
  31. Krueger RA. Focus groups: a practical guide for applied research. London: Sage; 1994;
  32. Morgan DL. Focus groups as qualitative research. 2nd ed.. Thousand Oaks, CA: Sage; 1997;
  33. Smithson J. Using and analysing focus groups: limitations and possibilities. Soc Res Methods. 2000;3:103–119
  34. Barrett J, Kirk S. Running focus groups with elderly and disabled elderly participants. Appl Ergon. 2000;31:621–629
  35. Gray-Vickrey P. Gerontological research: use and application of focus groups. J Gerontol Nurs. 1993;19:21–27
  36. Vogt DS, King DW, King LA. Focus groups in psychological assessment: enhancing content validity by consulting members of the target population. Psychol Assess. 2004;16:231–243
  37. Murphy E, Dingwall R. Qualitative methods and health policy research. NY: Walter de Gruyter; 2003;
  38. Dudley T, Phillips N. Focus group analysis: a guide for HIV community planning group members. Retrieved March 10, 2006, from University of Texas Southwestern Medical Center Web site: http://www8.utsouthwestern.edu/vgn/images/portal/cit_56417/19/62/205397Guide_for_Focus_Group_Analysis.pdf.
  39. Wellwood I, Dennis MS, Warlow CP. Perceptions and knowledge of stroke among surviving patients with stroke and their carers. Age Ageing. 1994;23:293–298
  40. Pate RR, Pratt M, Blair SN, Haskell WL, Macera CA, Bouchard C, et al. Physical activity and public health: a recommendation from the centers for disease control and prevention and the American college of sports medicine. J Am Med Assoc. 1995;273:402–407
  41. Australian Institute of Health and Welfare. Heart, stroke and vascular diseases—Australian facts 2001. AIHW Cat No CVD13. AIHW, National Heart Foundation, National Stroke Foundation of Australia (Cardiovascular Disease Series No. 14), Canberra; 2001.
  42. Stroke Association. Stress. Retrieved March 9, 2006 from http://www.stroke.org.uk/information/all_about_stroke/why_has_it_happened/stress.html; 2006.
  43. Townend E, Tinson D, Kwan J, Sharpe M. Fear of recurrence and beliefs about preventing recurrence in persons who have suffered a stroke. J Psychosom Res. 2006;61:747–755
  44. World Health Organisation. Patients’ rights. Retrieved March 8, 2006, from http://www.who.int/genomics/public/patientrights/en/print.html; 2006.

PII: S0738-3991(07)00346-1

doi: 10.1016/j.pec.2007.09.006

Patient Education and Counseling
Volume 70, Issue 1 , Pages 126-134 , January 2008