Patient Education and Counseling
Volume 70, Issue 1 , Pages 10-24 , January 2008

One-to-one volunteer support programs for people with cancer: A review of the literature

  • Michelle L. Macvean

      Affiliations

    • The Cancer Council Victoria, Melbourne, Vic., Australia
  • ,
  • Victoria M. White

      Affiliations

    • The Cancer Council Victoria, Melbourne, Vic., Australia
    • Corresponding Author InformationCorresponding author at: Centre for Behavioural Research in Cancer, The Cancer Council Victoria, 1 Rathdowne Street, Carlton, Vic. 3053, Australia. Tel.: +61 3 9635 5197; fax: +61 3 9635 5380.
  • ,
  • Rob Sanson-Fisher

      Affiliations

    • The University of Newcastle, NSW, Australia

Received 11 October 2006 ,Revised 6 August 2007 ,Accepted 12 August 2007.

References 

  1. Bureau of Labor Statistics. Volunteering in 2005. Washington, DC: US Department of Labor, Bureau of Labor Statistics; 2005;
  2. Department of Communities and Local Government. 2005 Home Office Citizenship Survey Active Communities Topic Report. London: DCLG Publications; 2006;
  3. Australian Government, Department of Family and Community Services. Giving Australia: research on Philanthropy in Australia. Canberra, ACT: Commonwealth of Australia; 2005.
  4. Statistics Canada. 2004 Canada Survey of Giving, Volunteering and Participating. Ottawa, Ontario: Statistics Canada; 2004;
  5. Australian Bureau of Statistics. Voluntary Work Survey. Canberra, ACT: Australian Bureau of Statistics; 2000;
  6. Australian Bureau of Statistics. General Social Survey. Canberra, ACT: Australian Bureau of Statistics; 2002;
  7. American Cancer Society. ACS Fact Sheet, 2006. Retrieved from http://www.cancer.org/docroot/AA/content/AA_1_2_ACS_Fact_Sheet.asp on 21 August 2006.
  8. Cutrona CE. Stress and social support—in search of optimal matching. J Soc Clin Psychol. 1990;9:3–14
  9. Gray RE, Fitch M, Davis C, Phillips C. Interviews with men with prostate cancer about their self-help group experience. J Palliative Care. 1997;13:15–21
  10. Ussher J, Kirsten L, Butow P, Sandoval M. What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Soc Sci Med. 2006;62:2565–2576
  11. Campbell HS, Phaneuf MR, Deane K. Cancer peer support programs-do they work?. Patient Educ Couns. 2004;55:3–15
  12. Dunn J, Steginga SK, Rosoman N, Millichap D. A review of peer support in the context of cancer. J Psychosoc Oncol. 2003;21:55–67
  13. Moher D, Schulz KF, Altman DG CONSORT Group. The CONSORT statement: revised recommendations for improving the quality of reports of parallel-group randomised trials. Clin Oral Invest. 2003;7:2–7
  14. The Joint Committee on Standards for Educational Evaluation. The program evaluation standards: How to assess evaluations for educational programs. Thousand Oaks, CA: Sage Publications; 1994;
  15. Cochrane Effective Practice and Organisation of Care Review Group (EPOC). The data collection checklist. Cochrane Effective Practice and Organisation of Care Review Group, 2002. Retrieved from http://www.epoc.uottawa.ca/checklist2002.doc on 21 August 2006.
  16. Sulzer-Azaroff B, Mayer GR. Behavior analysis for lasting change. Chicago: Holt, Rinehart & Winston; 1991;
  17. Fogg C. Breast cancer care: providing practical and emotional support. Eur J Cancer Care (Engl). 2000;9:136–137
  18. Katz RS. CanSupport. Generations. 1987;26–27
  19. The Cancer Council New South Wales. Cancer Council Connect provides one-to-one support for people with cancer. Nurs Aust. 2004;5:13
  20. Tilkeridis J, O’Connor L, Pignalosa G, Bramwell M, Jefford M. Peer support for cancer patients. Aust Fam Physician. 2005;34:288–289
  21. Timothy FE. The reach to recovery program in America and Europe. Cancer. 1980;46:1059–1060
  22. Wiesenthal M. Reach-to-recovery program of the American Cancer Society. Cancer. 1984;53:825–827
  23. Willits M-j. Role of “Reach to Recovery” in breast cancer. Cancer. 1994;74:2172–2173
  24. Bishop A, Kovtun A, Okromeshko S, Karpilovskaya S, Suprun N. Lives renewed: the emergence of a breast cancer survivor movement in Ukraine. Reprod Health Matters. 2001;9:126–134
  25. Burdick D. Rehabilitation of the breast cancer patient. Cancer. 1975;36:645–648
  26. Edgar L, Remmer J, Rosberger Z, Rapkin B. An oncology volunteer support organization: the benefits and fit within the health care system. Psychooncology. 1996;5:331–341
  27. Gray R, Greenberg M, McBurney T, Douglas MS. Partnerships between self-help networks and health care facilities: the case of the Bayview Support Network. Health Manage Forum. 1997;10:55–56
  28. Maull F. Dying in prison: sociocultural and psychosocial dynamics. Hosp J. 1991;7:127–142
  29. McQuellon RP, Hurt GJ, DeChatelet P. Psychosocial care of the patient with cancer. A model for organizing services. Cancer Pract. 1996;4:304–311
  30. Rogers TF, Bauman LJ, Metzger L. An assessment of the Reach to Recovery program. CA Cancer J Clin. 1985;35:116–124
  31. Rogers TF, Bauman LJ, Metzger LF. Effects of peer support: reach to recovery and the mastectomy patient. Prog Clin Biol Res. 1984;156:335–351
  32. Mantovani G, Astara G, Lampis B, Bianchi A, Curreli L, Orru W, et al. Impact of psychosocial intervention on the quality of life of elderly cancer patients. Psychooncology. 1996;5:127–135
  33. Mantovani G, Astara G, Lampis B, Bianchi A, Curreli L, Orru W, et al. Evaluation by multidimensional instruments of health-related quality of life of elderly cancer patients undergoing three different “psychosocial” treatment approaches. A randomized clinical trial. Support Care Cancer. 1996;4:129–140
  34. Gilbar O, Groisman L. A training model of a self-help group for patients with cancer of the colon. J Psychosoc Oncol. 1991;9:57–69
  35. Goh CR, Shaw RJ. Evolution of a hospice home care service in Singapore. Ann Acad Med Singapore. 1994;23:275–281
  36. Mullen E. WIN against breast cancer programs. Plast Surg Nurs. 1999;19:121–125
  37. Murphy PP, Byrnes DD. Chemo care: a model of support for chemotherapy patients. Oncol Nurs Forum. 1983;10:30–31
  38. O'Sullivan JF. A mastectomy advisory service. Practitioner. 1982;226:1422–1425
  39. Rainey LC. Cancer counseling by telephone help-line: the UCLA Psychosocial Cancer Counseling Line. Public Health Rep. 1985;100:308–315
  40. Reuille R. An evaluation of the Moffitt Cancer Center's Laryngectomee Visitor program. J Oncol Manage. 2004;13:12–18
  41. Rinehart ME. The reach to recovery program. Cancer. 1994;74:372–375
  42. Brown-Hunter M, Price LK. The Good Neighbor Project: volunteerism and the elderly African-American patient with cancer. Geriatr Nurs. 1998;19:139–141
  43. Cameron C, Ashbury FD, Iverson DC. Perspectives on Reach to Recovery and CanSurmount: informing the evaluation model. Cancer Prev Control. 1997;1:102–107
  44. Dunn J, Steginga SK, Occhipinti S, Wilson K. Evaluation of a peer support program for women with breast cancer—lessons for practitioners. J Community Appl Soc Psychol. 1999;9:13–22
  45. Fusco-Karmann C, Tamburini M. Volunteers in hospital and home care: a precious resource. Tumori. 1994;80:269–272
  46. Giese-Davis J, Bliss-Isberg C, Carson K, Star P, Donaghy J, Cordova MJ, et al. The effect of peer counseling on quality of life following diagnosis of breast cancer: an observational study. Psychooncology. 2006;15:1014–1022
  47. Kleiman MA, Mantell JE, Alexander ES. RX for social death: the cancer patient as counsellor. Community Ment Health J. 1977;13:115–124
  48. May CH, McPhee MC, Pritchard DJ. An amputee visitor program as an adjunct to rehabilitation of the lower limb amputee. Mayo Clin Proc. 1979;54:774–778
  49. Schover LR, Jenkins R, Sui D, Adams JH, Marion MS, Jackson KE. Randomized trial of peer counseling on reproductive health in African American breast cancer survivors. J Clin Oncol. 2006;24:1620–1626
  50. Smith CE, Haynes K, Rebeck SL, Murdock BH, King N, Kleinbeck SV, et al. Patients as peer preceptors for orthopedic oncology rehabilitation patients. Rehab Nurs. 1998;23:78–83
  51. Sutton LB, Erlen JA. Effects of mutual dyad support on quality of life in women with breast cancer. Cancer Nurs. 2006;29:488–498
  52. Ashbury FD, Cameron C, Mercer SL, Fitch M, Nielsen E. One-on-one peer support and quality of life for breast cancer patients. Patient Educ Couns. 1998;35:89–100
  53. Edgar LJ, Remmer J, Rosberger Z, Rapkin B. Evaluating a Volunteer Cancer Support Service. J Psychosoc Oncol. 2003;21:1–20
  54. Geiger AM, Mullen ES, Sloman PA, Edgerton BW, Petitti DB. Evaluation of a breast cancer patient information and support program. Eff Clin Pract. 2000;3:157–165
  55. Rankin N, Williams P, Davis C, Girgis A. The use and acceptability of a one-on-one peer support program for Australian women with early breast cancer. Patient Educ Couns. 2004;53:141–146
  56. Ventafridda V, Tamburini M, Selmi S, Valera L, De Conno F. The importance of a home care program for patients with advanced cancer pain. Tumori. 1985;71:449–454
  57. McArdle JMC, George WD, McArdle CS, Smith DC, Moodie AR, Hughson AVM, et al. Psychological support for patients undergoing breast cancer surgery: a randomised study. Br Med J. 1996;312:813–816
  58. Rudy RR, Rosenfeld LB, Galassi JP, Parker J, Schanberg R. Participants’ perceptions of a peer-helper, telephone-based social support intervention for melanoma patients. Health Commun. 2001;13:285–305
  59. Weber BA, Roberts BL, Resnick M, Deimling G, Zauszniewski JA, Musil C, et al. The effect of dyadic intervention on self-efficacy, social support, and depression for men with prostate cancer. Psychooncology. 2004;13:47–60

PII: S0738-3991(07)00312-6

doi: 10.1016/j.pec.2007.08.005

Patient Education and Counseling
Volume 70, Issue 1 , Pages 10-24 , January 2008